Catalyst Pharmaceuticals, Inc.

We are focused on developing and commercializing innovative therapies for people with rare neurological diseases.

Director of Patient Advocacy – Firdapse

DirectorDirectorFull TimeRemoteTeam 51-200Since 2002H1B No SponsorCompany SiteLinkedIn

Location

Illinois

Posted

17 days ago

Salary

$213K - $235K / year

Bachelor Degree7 yrs expEnglish

Job Description

• Develop and implement a comprehensive advocacy strategy that aligns with the organization's mission and objectives • Identify emerging trends, challenges, and opportunities in the advocacy space to adapt and refine strategies • Build and maintain relationships with key stakeholders, including patient advocacy groups and community leaders • Develop strategies to effectively partner with and support patient organizations • Liaise between Catalyst, patient advocacy organizations, and patient advocates • Share company activities and interests with patient advocacy groups and key advocacy leaders as appropriate • Lead the development and execution of advocacy campaigns, initiatives, and programs to support patients, communities, or target populations • Oversee the creation of resources and tools to empower patients and amplify advocacy efforts • Coordinate and assist in the development of internal and external advocacy programs • Monitor and evaluate the impact of advocacy programs to ensure effectiveness and continuous improvement • Provide strategic guidance and support to team members to ensure the successful execution of advocacy initiatives • Collaborate with internal teams (e.g., marketing, digital marketing, sales, and medical affairs) to align advocacy efforts with broader organizational goals • Serve as the voice of the patient both internally and externally by representing the organization at conferences, panels, and media forums; leading partner and vendor engagements; and ensuring patient perspectives are integrated into strategic decision-making • Develop messaging and communication strategies to amplify advocacy goals and organizational impact • Represent the company at key patient advocacy group events and community meetings • Participate in public speaking opportunities including conferences, workshops, panels, videos, and podcasts • Provide oversight of patient advocacy grant and sponsorship programs, ensuring alignment with organizational strategy, compliance standards, and community impact goals • Direct annual and multi-year budget planning for patient advocacy initiatives, optimizing resources to maximize reach and sustainability • Lead financial forecasting and resource allocation in partnership with cross-functional leaders, ensuring fiscal accountability and strategic investment in advocacy priorities • Additional responsibilities as assigned

Job Requirements

  • Bachelor’s Degree and 7-10 years of relevant patient centric advocacy experience in nonprofit and/or biotech/pharma sectors
  • 3-5 years in a leadership or managerial role overseeing advocacy programs, partnerships, or teams
  • Exceptional verbal and written communication skills, including editing, and the ability to create effective communications, including educational materials and visual presentations, etc.
  • Strong commitment to fostering a patient-focused approach throughout the organization
  • Demonstrated passion for advocating on behalf of patient communities and addressing their needs
  • Demonstrated ability to cultivate and maintain mutually beneficial relationships with both internal and external stakeholders
  • Collaborative team member who is eager to work closely with colleagues
  • Strong organizational skills
  • Excel in project management, prioritize tasks, organize and manage multiple projects.

Benefits

  • health, dental, and vision insurance
  • generous paid time off
  • retirement savings plan with Company Match

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